New report released by The National Disability Rights Network

The National Disability Rights Network (NDRN) released a report summarizing two community monitoring projects supported with funding from the Administration on Developmental Disabilities (ADD). The protection and advocacy (P&A) programs in Alabama and North Carolina tracked individuals leaving institutions and moving into the community to determine if their lives had improved, if they had new opportunities, and if they were safe. The programs found that people were generally happy and enjoyed their greater independence and freedom. However, they also found safety issues (hornets’ nest above the front door, broken wheelchair tray) that were promptly addressed by service providers. In Alabama, several individuals with medically complex needs died shortly after moving out of the Partlow state institution. The P&A worked with the state to implement more stringent transition protocols and no one has since died. The report recommends additional monitoring of community based settings by protection and advocacy programs.

Administration on Developmental Disabilities – Seeks comments on its proposed survey

The Administration on Developmental Disabilities (ADD) is conducting an independent evaluation of the effectiveness of the three state developmental disabilities (DD) programs — the Councils on Developmental Disabilities (DD Councils), the University Centers on Excellence (UCEDDs) and the Protection and Advocacy programs (P&As). The evaluation also will examine how effectively ADD supports the three programs. As part of the evaluation, ADD has developed an on-line survey instrument to collect data from DD network staff, collaborators, and recipients of services. ADD will provide copies of the survey instrument in response to written requests. The Office of Management and Budget must approve the survey before ADD can use it. As part of the approval process, OMB is giving the public a chance to offer comments. Comments are due by December 31, 2010. For more information, see

ADD Summit in Florida

Disability Policy Collaboration staff participated in a two day Administration on Developmental Disabilities (ADD) Regional Summit held in Orlando. One of five planned regional summits, these meetings are intended to solicit stakeholder views on future priority directions for the ADD. ADD Commissioner Sharon Lewis led the Summit. There will be two more summits in this series –  Detroit (December 2) and Denver (December 6). For more information, see

Administration on Developmental Disabilities (ADD) Summits

There are three remaining summits sponsored by ADD.  The Agency is seeking input on the following questions: What do children with intellectual and developmental disabilities (IDD) need to live happy lives with their families?; what do adults with IDD need to live meaningful lives in their communities?; and what do seniors with IDD need to live long, healthy lives in their homes?  Click on the links below to register to participate via telephone or in person:
November 15      Dallas, TX
December 2        Detroit, MI 

December 6        Denver, CO
ADD oversees the programs created by the Developmental Disabilities Act:
1) Protection and Advocacy Systems (P & As)
2) Councils on Developmental Disabilities (DD  Councils)
3) University Centers for Excellence in Development Disabilities (UCEDs)
4) Projects of National Significance

Chapters of The Arc and affiliates of UCP have extensive involvement with each of these programs and have a vested interest in helping to make them as effective as possible.  Our ideas will be used to help develop ADD’s five-year strategic plan. Registrants are encouraged to share any personal or professional knowledge and experience that can help improve the quality of life for people with IDD.  They can also use the talking points developed by the DPC.