On May 16, the Centers for Medicare and Medicaid Services (CMS) issued guidance on implementation of electronic visit verification (EVV) required in the 21st Century Cures Act. Congress directed CMS to issue this guidance at least one year before the implementation deadline of January 19, 2019. The statute requires EVV for personal care services and home health services. However, the guidance provides a very expansive interpretation that includes any service where assistance with activities of daily living or instrumental activities of daily living is provided in part in the home. Furthermore, it leaves many decisions with privacy implications up to states. The Arc believes the short time frame is insufficient for states to engage with stakeholders to implement these requirements in a way that does not put an undue burden on providers and does not violates the privacy of beneficiaries.
On May 11, the U.S. Commission on Civil Rights held a public briefing titled “In the Name of Hate: Examining the Federal Government’s Role in Responding to Hate Crimes”. Nicole Jorwic, Director of Rights Policy at The Arc of the United States, testified about hate crimes against people with disabilities. She discussed the many barriers to the reporting and prosecution of hate crimes, including untrained officers believing that victims with disabilities are not credible, lack of standardized protocols for handling complaints from victims with disabilities, lack of training for prosecutors and other court officials, hate crimes being minimized and viewed as pranks or bullying, and people with disabilities being afraid to report someone they know. Watch Nicole’s testimony here.
Senators Bob Casey (D-PA) and Maggie Hassan (D-NH) introduced S. 2530, the Safe Equitable Campus Resources and Education (SECuRE) Act on March 9. Representative Debbie Dingell (D-MI) introduced companion legislation (H.R. 5241) in the House of Representatives. The SECuRE Act ensures the needs of students with disabilities will be taken into account in campus planning and response efforts to sexual assault on campus, and that resources provided to the campus community are accessible to everyone. Specifically, the SECuRE Act would improve prevention programs, reporting systems, personnel training, and disciplinary proceedings. A recent report from the National Council on Disability, “Not on the Radar: Sexual Assault of College Students with Disabilities,” found that the needs of these students are often not addressed under existing policies. The Arc supports this legislation.
On February 16, the House of Representatives passed the ADA Education and Reform Act of 2017 (H.R. 620) by a vote of 225-192. This bill prevents lawsuits over architectural barriers violating the Americans with Disabilities Act (ADA) unless an individual provides “specific enough” notice and allows 120 days for a business to correct that barrier. The bill’s supporters believe that the ADA has led to “frivolous lawsuits” where plaintiffs and attorneys intentionally seek barriers in order to extract funds. However, the ADA does not allow courts to award monetary damages to plaintiffs. Where those damages are available, it is through state law. Furthermore, there are already laws on the books that allow punishment of attorneys who represent clients in frivolous lawsuits. This bill effectively eliminates incentives for businesses to comply with federal law until 120 days after a person with a disability asks them to do so. See this fact sheet from Disability Rights Education & Defense Fund for more information. Click here to read The Arc’s statement.
The Department of Education’s Office for Civil Rights (OCR) published a list of pending cases currently under investigation at elementary, secondary, and postsecondary schools, sorted by aspects of the law that OCR enforces, including disability. The inclusion of an institution on this list means only that a complaint was filed with OCR, and the agency determined the complaint should be opened for investigation or the agency has opened a compliance review. OCR is still investigating these cases or otherwise working to resolve them. See the list of institutions under investigation for disability discrimination here.
At a moment of reckoning in the United States about sexual harassment and sexual assault, a yearlong National Public Radio (NPR) investigation finds that there’s little recognition of a group of Americans that is one of the most at risk: adults with intellectual disabilities. The series starts on Monday, January 8th and runs through Thursday, January 18th. The Director of The Arc’s National Center on Criminal Justice and Disability, Leigh Ann Davis, was interviewed for this series in addition to staff and clients on several chapters of The Arc. The series schedule is as follows and can be found at www.npr.org:
- Jan 8: Morning Edition: Correspondent Joe Shapiro talks about the series with host Steve Inskeep.
- Jan 8: All Things Considered: The epidemic of sexual abuse of people with intellectual disability. Numbers obtained by NPR show they are sexually assaulted at rates more than 7 times those for all adults without disabilities.
- Jan 9: Morning Edition: A visit to a Sex Ed class for people with intellectual disability. They talk about how they want relationships, but how the sexual violence of their past often gets in the way.
- Jan 10: All Things Considered: On cases that go unnoticed when people have difficulty communicating.
- Jan 16: All Things Considered: Police and prosecutors are often reluctant to take these cases. NPR goes back to Essex County, New Jersey, where the first case to get widespread attention–in Glen Ridge, New Jersey, 25 years ago–was prosecuted. And look at what prosecutors have learned since.
- Jan 18: Morning Edition: Therapists Nora Baladerian and Karyn Harvey talk about the stunning violence in the lives of their clients.
- Jan 18: All Things Considered: Self-advocates speak of the effects of sexual violence. This piece is entirely in the voices of people with intellectual disability (plus Joe Shapiro).
On October 19, the Senate Health, Education, Labor and Pensions Committee held a hearing on “Examining How Healthy Choices Can Improve Health Outcomes and Reduce Costs.” Witnesses were Steve Burd, Founder and CEO, Burd Health; Michael F. Roizen, MD, Chief Wellness Officer and Founding Chair of the Wellness Institute at the Cleveland Clinic; David A. Asch, MD, MBA, John Morgan Professor, Perelman School of Medicine and the Wharton School, Executive Director, Center for Health Care Innovation, University of Pennsylvania; and Jennifer Mathis, Director of Policy and Legal Advocacy, Judge David L. Bazelon Center for Mental Health Law. In her testimony, Mathis discussed the negative impact that regulations that define programs as “voluntary” when they charge penalties for non-participation have on the rights of people with disabilities. Visit the committee web site to review opening statements and archived video.
On September 7, the House Judiciary Committee approved the ADA Education and Reform Act of 2017 (H.R.620) by a vote of 15-9. This bill prevents lawsuits over architectural barriers violating the Americans with Disabilities Act (ADA) unless an individual provides “specific enough” notice and allows 120 days for a business to correct that barrier. The bill was introduced on the belief that the ADA has led to “frivolous lawsuits” where plaintiffs and attorneys intentionally seek barriers in order to extract funds. However, the ADA does not allow courts to award monetary damages to plaintiffs. Where those damages are available, it is through state law. Furthermore, there are already laws on the books that allow punishment of attorneys who represent clients in frivolous lawsuits. This bill effectively eliminates incentives for businesses to comply with federal law until 120 days after a person with a disability asks them to do so. See this fact sheet from Disability Rights Education & Defense Fund for more information.
According to a Rutgers University research report, people with disabilities and their families accounted for 25% of the electorate in 2016. Yet, people with disabilities register and vote at rates that continue to lag behind voters without disabilities.
Let’s change that! This is National Disability Voter Registration week – and it’s time to Register! Educate! Vote! Use your Power! Join the REV UP Campaign and use this quick and easy link to Register to Vote Now!
Already registered? Make sure your friends and family are registered too!
Here are helpful resources:
- Organizations by state that provide voting support to individuals with disabilities.
- Ten Tips for Voters with Disabilities
Thank you for your supporting National Disability Voter Registration Week!
On April 7, the Senate confirmed Judge Neil Gorsuch as Associate Justice by a vote of 54-45. This followed the invocation of “cloture” or forcing an end to unlimited debate. Traditionally, this requires 60 votes. However, the Senate invoked the “nuclear option” which allows reinterpretation of the rules by a simple majority vote (51 votes) to change the vote required for cloture on Supreme Court nominees to a simple majority. Issues important to people with disabilities often come before the U.S. Supreme Court. They span such important concerns as rights under the Americans with Disabilities Act, the right to fair, non-discriminatory treatment in health care settings, and the death penalty.