Transportation – Paralyzed Veterans of America (PVA) Conducts Survey on Airline Lavatory Accessibility

Paralyzed Veterans of America is conducting a survey to gather input for the Department of Transportation’s ACCESS Committee on barriers to the accessibility of airplane bathrooms. The purpose of the survey is to determine the impact on people with disabilities and to try to make a case for requiring accessible lavatories on single-aisle airplanes. While preliminary results are due to the committee on July 22, the survey will remain open until August 1.

New Survey on Guardianship Released

TASH, ASAN, ACLU, The Arc of Michigan, and Quality Trust are collaborating on a survey of parents and individuals with disabilities to understand what they may have experienced related to guardianship.

The survey sponsors are seeking information on how and when people with disabilities are put under guardianship (or conservatorship).   If you are a parent and/or a person with a disability over 18, please take this important survey – http://tash.org/ymq6. The deadline for this survey is June 4.

Survey Seeks Information about Health and People with Disabilities

The Arc’s HealthMeet initiative, which aims to reduce health disparities among people with intellectual disabilities (ID), is launching a short, internet-based survey for family or staff who support people with ID.  This survey asks questions about health status of people with ID and can also be used as a checklist to help people identify red flags about the health of the person you support. The survey takes about 15 minutes.  Take the survey now.  Please share with your friends, families and colleagues who provide support for people with ID.

Seeking Respondents for Transitions Survey

The University of South Carolina (USC) School of Medicine is looking for 15-24 year-olds who have Spina Bifida, Muscular Dystrophy, or Fragile X Syndrome who are willing to tell about their school, work, family, and community life in an online survey. This effort is supported by the Centers for Disease Control and Prevention (CDC). USC plans to use this information to provide concrete recommendations to policy makers who can effect change in the provision of essential services needed by adolescents as they transition into adulthood. The survey deadline is June 30. Please complete the survey on Surveymonkey.

New survey on Access to Assistive Devices under Medicare

The Independence through Enhancement of Medicare and Medicaid Coalition (ITEM) is surveying people with disabilities and chronic conditions to assess whether they are experiencing problems with accessing the devices they need to function independently in everyday life. Specifically, they are interested in hearing from medical device and assistive technology users who live in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program. They would like to find out how access to devices and services is being impacted.

Please respond to the survey if you are a Medicare beneficiary who uses a device to remain independent, and please share the survey with other Medicare beneficiaries, either directly or through providers. All beneficiaries who use assistive devices are encouraged to respond, even if they live outside of a bidding area.

Any information shared about the identity of the respondents will be kept strictly confidential, and only shared with the respondent’s permission.

Put a Face on Medicaid, SSI, Social Security

As Congress reconvenes for a post-election session where potential changes or cuts to programs like Medicaid, Supplemental Security Income (SSI), and Social Security may be put on the table, we need your help to put a face on the importance of these programs by sharing lifeline stories about individuals with intellectual and developmental disabilities (I/DD).

The Arc’s national office needs stories from self-advocates, parents, and other family members, chapters of The Arc, other service providers, and friends. We have to put a face on programs like Medicaid, SSI, and Social Security in order to convince Congress to protect these programs from devastating cuts during budget negotiations. More than 200 stories have been submitted from 22 states. This is a great start, but it is critical that we receive sufficient stories from across the country.

Please share this survey with your members, the families you serve, and other organizations in your community so that we can gather as many stories as possible, and quickly, so that The Arc can help protect these lifeline programs.

Put a Face on Medicaid, SSI, Social Security

As Congress reconvenes for a post-election session where potential changes or cuts to programs like Medicaid, Supplemental Security Income (SSI), and Social Security may be put on the table, we need your help to put a face on the importance of these programs by sharing lifeline stories about individuals with intellectual and developmental disabilities (I/DD).

The Arc’s national office needs stories from self-advocates, parents, and other family members, chapters of The Arc, other service providers, and friends. We have to put a face on programs like Medicaid, SSI, and Social Security in order to convince Congress to protect these programs from devastating cuts during budget negotiations. More than 200 stories have been submitted from 22 states. This is a great start, but it is critical that we receive sufficient stories from across the country.

Please share this survey with your members, the families you serve, and other organizations in your community so that we can gather as many stories as possible, and quickly, so that The Arc can help protect these lifeline programs.