Family Support/Employment – The Arc to Host Webinar on Paid Family and Medical Leave from the Disability Angle

People across the United States are talking about the need for paid family and medical leave. New research by The Arc and the Georgetown Center on Poverty and Inequality (GCPI) highlights how access to paid leave can promote economic security and stability for people with disabilities and their families. Join us on Monday, October 23 at 2 p.m. Eastern Daylight Time at http://bit.ly/2xrvEQF to learn more! Presenters will include Kali Grant, GCPI; T.J. Sutcliffe, The Arc; Erika Hagensen, North Carolina; and Lauren Agoratus, New Jersey.

Family Support – RAISE Family Caregivers Act Passes Senate

On September 27, the Senate passed The Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act by unanimous consent. This bipartisan legislation, introduced by Senators Susan Collins (R-ME), Tammy Baldwin (D-WI), Lisa Murkowski (R-AK), and Michael Bennet (D-CO), calls for the development of a national strategy to support the nation’s more than 40 million caregivers. It would bring together stakeholders from both the public and private sector to create an advisory body. This advisory body would then develop recommendations for how government, communities, providers, employers, and others can better recognize and support family caregivers. See the statement from the lead Senate sponsors here. The next step is for the House to pass its version of the bill, H.R. 3759, out of committee. The Arc encourages advocates to ask their representative to join the list of cosponsors.

Family Support – RAISE Family Caregivers Act Introduced in House

The Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (H.R. 3759) was introduced in the House by Representatives Gregg Harper (R-MS) and Kathy Castor (D-FL) with Reps. Michelle Lujan Grisham (D-NM) and Elise Stefanik (R-NY) as original cosponsors on September 13. The Arc supports this bill to implement the recommendation of the federal Commission on Long-Term Care for the development of a national strategy to support family caregivers. The bill would create an advisory body to bring together relevant federal agencies and others from the private and public sectors. The advisory body is charged with identifying specific actions that government, communities, providers, employers, and others can take to recognize and support family caregivers. The Senate’s version of the bill (S.1028) was passed by the Health, Education, Labor, and Pensions Committee in May by unanimous voice vote.

Employment/Family Support – The Arc Releases Report, Video on Paid Family and Medical Leave

Last week, The Arc and the Georgetown Center on Poverty and Inequality released a first of its kind paper outlining why paid family and medical leave is a necessity for the economic security and stability of people with disabilities and their families.

The Arc also released a video featuring one family’s paid leave story, and a set of stories profiling several workers whose paid leave stories highlight the disability perspective.

Learn more at: http://www.thearc.org/paidleave.

Family Support – Lifespan Respite Reauthorization Bills Introduced

Rep. Jim Langevin (D-RI) and Rep. Gregg Harper (R-MS) introduced the Lifespan Respite Reauthorization Act (H.R. 2535) on May 18, 2017. The companion bill (S. 1188) was introduced in the Senate by Sen. Susan Collins (R-ME), and Sen. Tammy Baldwin (D-WI) the same day. The Lifespan Respite Care Program, through grants to states, helps build coordinated state lifespan respite systems, helps family caregivers pay for respite or find funding sources, encourages development of new and innovative community and faith based respite opportunities, and trains respite workers and volunteers. The Arc supports this legislation that would reauthorize the program through 2022 at an authorization level of $75 million over five years ($15 million each year).

Family Support – Caregiver Strategy Bill Passed by Senate Committee

On May 11, the Senate Health Education Labor and Pensions Committeepassed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (S. 1028) by unanimous voice vote. This bipartisan bill was introduced by Senators Susan Collins (R-ME), Tammy Baldwin (D-WI), Lisa Murkowski (R-AK), and Michael Bennet (D-CO). The Arc supports this bill to implement the recommendation of the federal Commission on Long-Term Care for the development of a national strategy to support family caregivers. The bill would create an advisory body to bring together relevant federal agencies and others from the private and public sectors. The advisory body is charged with identifying specific actions that government, communities, providers, employers, and others can take to recognize and support family caregivers.

Family Support – Caregiver Strategy Bill Introduced in the Senate

On May 3, Senator Susan Collins (R-ME) introduced S. 1028, the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. The Arc supports this bipartisan legislation to implement the recommendation of the federal Commission on Long-Term Care for the development of a national strategy to support family caregivers. The bill would create an advisory body to bring together relevant federal agencies and others from the private and public sectors. The advisory body is charged with identifying specific actions that government, communities, providers, employers, and others can take to recognize and support family caregivers. S. 1028 is scheduled to be marked up by the Senate Health, Education, Labor, and Pensions Committee on May 10.

Family Support – Paid Sick Leave Bills Introduced in House and Senate

Senator Patty Murray (D-WA), ranking member of the Senate Health, Education, Labor, and Pensions (HELP) Committee, and Representative Rosa DeLauro (D-CT), reintroduced the Healthy Families Act (S. 636 and H.R. 1516) in the second week of March. The Arc supports this legislation that would allow workers to earn paid sick leave to use when they are sick, to care for a loved one, to obtain preventative care, or to address the impacts of domestic violence, stalking, or sexual assault. Under this legislation, workers can earn up to 56 hours (seven days) of paid sick time by earning one hour of paid sick time for every 30 hours worked. Small employers with fewer than 15 employees would not be required to provide paid sick days.

Family Support/Health Care – New Study Discusses Costs of Family-Provided Health Care for Children with Special Health Care Needs

A study published in the journal Pediatrics examines the costs of family caregiving for children with special health care needs (CSHCN). There are about 5.6 million CSHCN in the U.S. who receive a total of 1.5 billion hours of uncompensated family care. Replacement with home health would cost approximately $35.7 billion, an average of $6,400 per child. The cost in forgone earnings for caregivers was about $17.6 billion or $3,200 per child.

Family Support – Webinar on TimeBanking for Respite Services

The ARCH National Respite Network and Resource Center is sponsoring a webinar, TimeBanking for Respite: An Innovative and Socially Just Approach to Supporting Family Caregivers on Wednesday, May 25, 2016 from 3:00 pm – 4:30 pm, EDT. This webinar will describe the history and philosophy of TimeBanking and describe how TimeBanks can be applied to the offering of respite care to family caregivers. Timebanking is based on the idea is that those receiving help can “pay” for the services they receive from others, not with money but time credits which they have earned by helping others. Edgar Cahn, CEO of TimeBanks USA, will provide an overview of the content, philosophy and functions of TimeBanks. Chris Gray, TimeBanks Special Projects Coordinator, will provide more details on how these principles can be applied to delivery of respite services. Register here.